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At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Saturday, May 8, 2010

Still Saturday

Sorry about that, I was having a moment. Total Debbie Downer, geez. I took a long walk with the dumb dog, snuggled with my boy, and made myself a delicious ruby red cocktail. Suddenly, everything seems better! Actually, I've spent the last hour immersed in the National Ataxia Foundation's message boards. So many stories that ring familiar, ye gads. I've got some new stuff to research, action is good. I think that my depressed, down feeling came from realizing that we've now done just about every test and we still have no answers. I can't deal with the watch and wait prognosis, I need to DO something. And you know what I found out? There's an Ataxia Clinic at UCLA. The doctors here are annoying me, maybe it's time to start harassing the folks up north....
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4 comments:

  1. michellEMay 8, 2010 at 9:54 PM

    Hang in there, everybody is allowed to have a tough day. I hope you find something to help Jimmy soon. I will keep sending positive thoughts your way to try and help.

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  2. toriluverMay 9, 2010 at 1:53 AM

    I think that's a great idea Jacquie. UCLA is awesome and you should do all you can. Happy Mother's Day! XOXO

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  3. Me, You, or EllieMay 10, 2010 at 5:42 AM

    Aw schnook.
    Yes! Do! Spread the love!
    xxEllie

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  4. Me, You, or EllieMay 10, 2010 at 8:07 AM

    Spread the love, Ellie, you crack me up.

    But why not? Go forth and go north.

    beth

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