At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Wednesday, May 12, 2010

Wednesday, May 12

When we last saw our tragic hero, I was feeling optimistic that we were on the tail end of his miserable lumbar headache. I took him to acupuncture in the afternoon, and was happy to note that the pain hadn't flared during the trip over there. It was a super-turbo session, I counted 33 needles!

He felt good afterwards, but I insisted that he remain flat for the rest of the night to increase our odds that he'd be okay this morning. Maybe it was the time, the rest, treatment, or sheer determination, but he woke up good to go! Yay!

I dropped him at school with a plea that I would be called if he reported even the slightest headache, but he made it through the day like a champ.

I actually spent almost a full day at work! Who knew what a treat that could be? I feel badly for everyone who wants to ask what's going on, but isn't quite sure how to do it. Shannon had a good one when she asked: "Is anything new today?" Everyone is very sensitive to the fact that although it's hard to only talk about this, it's just as hard to try to think about anything else.

Tomorrow he will go with his school on a field trip to Chicano Park, then I'll pick him up after the half day and take him to Bill's school to see their physical therapist. It's good to have friends in high places!

It was three weeks ago that we got the wheelchair and I started this blog. Life is still weird.

Today was pretty good. Even better things tomorrow.

Thanks for your support, it's cool to see who is following the blog. I'd love your comments if you are so inclined!


  1. I read daily, my prayers are with you! You are such a rock star of a mom!


  2. Hi Jacquie - encouraging to hear today was a bit better for you and Jimmy ... and we are praying each day proves better than it's yesterday. We're glad the Physical Therapist will see Jimmy. It's very good to have friends in high places. Especially, ones that are willing to help in any way they can. Physical Therapists can do wonders sometimes. It's hard to stay strong when faced with life challenges that don't seem to have any reasoning or definitive explanations. We won't even pretend to imagine what you are all going through, but admire the strength, courage and love we feel in your writing, and the love your family shares. Stay positive ... and stay encouraged with your Mantra "even better things tomorrow" ... as we will pray that Mantra for you, as well. Love you all - Charlotte and John

  3. Oh good Jacquie. Glad the boy *and* you got to have a semi-normal day.

    Three weeks???


  4. Oh, I'm so inclined. As you know.

    Has it really been 3 weeks? Holy mother of the cosmos, how can that be? Hang in there.

    I love the acupuncture photos (and the even better view of Jimmy's tatoos!). That boy is a rock star.

    I love this line from Charlotte and John's comment above:
    ..admire the strength, courage and love we feel in your writing...

    I agree, 100%.


  5. Hey Jacquie...following and worrying and praying for you all. You have an amazing attitude, and if you're anything like me, writing it all down (or writing it OUT) helps relieve the stress. Hope to see you if you make out east this summer, minus the wheelchair, only having fun swimming and playing at the club!!


  6. glad to hear everything looking up :)