At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Thursday, May 13, 2010

2 fer Thursday - let's get physical

Our Physical Therapy session was humbling and good. We walked in there so pumped about the improvement we have seen in the last day or so. In the first minute, she had Jimmy up and walking with support - he said: "I feel so tall!"

She got him down on the mat and could very quickly zone in on the area where he wobbles, his trunk. We learned some really good exercises we can use at home to encourage his body back into balance.

He worked hard, he pushed himself.

He was a little frustrated, which was tough to see after the high of his goal setting this morning. We're making progress, there's no doubt about that.

But he's still our wobble boy.


  1. From across the country, I send a mental hand of support, a vision of balance, and big cheer of motivation.

  2. Whoa. I can feel the wobble in that last photo. He looks good, Jacquie. I know that frustrated side of Jimmy but it looks like he's pushing that frustration aside while pushing himself. Awesome kid, he.

    Love seeing your girl too.

    I mostly just love seeing your boy neither supine nor prostrate nor awheel.

    Way to go, y'all.


  3. Gotta love that first standing tall photo! And the 2-fer.

    Now if he could only be back to the place he was April 19, right? But it's coming, it's coming.