At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Tuesday, May 11, 2010

Quick Update: Tuesday, May 11

Home again today, we thought maybe he could pull it off because he felt okay when he woke up, but he's so afraid of the headache coming back and the full day of museums just didn't seem conducive to someone who might need to get horizontal at a moment's notice. So I let him sleep in while I took Clara to school, and when I got home I let him sleep in while I got a bunch of work done, and then I let him sleep in some more... a solid 12 hours, and he woke up giggling. The headache is there, pounding and relentless, but he's doing okay. He's hopeful for tomorrow's adventures.

I was able to get him in for acupuncture at 3:30, she's going to work on his spine today so he'll be flat on the table. I know it will be a challenge to get him there, but I think it will help.

I finally spoke with the neurologist, who confirmed that we're doing all we can to help with the headache. I am so glad that we didn't go to the ER. He said that in his 20 years of practice, he's only had to perform a blood patch on 2 patients. He did say that if it persists for longer than 10-14 days (eek!), that would be our next step. He said to give him caffeine - the equivalent of 3 cups o' joe every day, along with 2 quarts of water! And to lay flat except to use the bathroom, which I expect will be necessary about every 5 seconds. The results he has back thus far from the spinal are all normal, which is what we want to hear even though it makes me cringe to think that the test could have been avoided. His recovery will be more swift when we eliminate unfounded worry that would come from wondering if we should have done it.

He's currently watching Rocky 2 while I pound out accounts and order supplies for work. They are amazingly supportive (thanks, team Manchester!), but I sure feel better having had a productive morning. I can't wait to get to the gym tonight!

Better things tomorrow, right?

1 comment:

  1. Absolutely, better things tomorrow. Have you ever read "Lily's Purple Plastic Purse"? (Duh, you've made a career in early child development!) Well that is the line that sticks with me, when her teacher, who Lily adores, tells her, "Today was a difficult day, but tomorrow will be better."

    Maybe Laurie can work on Jimmy's headache too?