At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Friday, May 7, 2010

Thursday, May 6

Jimmy had a good day today, he was happy to go to school and enjoyed his acupuncture afterwards. One thing that troubles me is that he says he can not visualize himself without "the wobble", he only sees himself falling down. Is it just too abstract a concept, or is he seeing his future? I'm scared to death of all that we do not know, and I'm on the verge of panic about tomorrow's lumbar puncture. I know he is in the best hands, and I'm very thankful that his doctor wrote the order in such a way that the sedation and hemo/onc clinic was approved by our insurance. Lucky, lucky. I attended an event tonight where I won so many raffle drawings that the other entrants were conjoined in their stink eye. That's a good sign, right? I did not accept the only prize I really wanted; that's good karma, right? I'll offer anything, I'll even give back my yoga mat and exercise videos and false eyelashes and I spy wii game and whatever else is in that swag bag, it's all absurdly unimportant. Just make him okay, okay?

We check in at 10, I'll get to stay with him until he's asleep,we should be home well before dinner time. If you're inclined to pray or hope or wish or dream, don't hold back!!!


  1. I'll be thinking about you guys all day. This really sucks that he's having to go through this, Jacquie. It just sucks.

  2. False eyelashes?? Awesome!
    Notice how I'm not talking about lumbar puncture? Lalalalalalalalalala.

    Love you Jacquie.

  3. Too abstract a concept.

    You'll both do great!

    I dare you to wear those false eyelashes today. The docs would all remember you, that's for sure!