At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Monday, May 17, 2010

Monday, May 17

In an interesting turn of events, Jimmy scored a nearly perfect grade on the math test he took covering the stuff I taught him at home this month! This both delights and frightens me.

He continues to maintain improved balance, it seems that the episodes of wobbles are fewer and farther between. There might just be a light peeking through the of this weird tunnel! I'm still cautiously optimistic at best, wanting to protect all of us from expecting too much too soon.

I'm having to work hard to get him up and working at exercises and movement. I don't know if he's scared or lazy or tired or what, but he prefers to stay put in the wheelchair.

I have to fill out a history form for the Physical Therapy assessment that asks stuff like when he first held his head up and crawled. A better mother would probably remember all that stuff! I'm sure I wrote it all in his baby book; being the first child, his book was fairly well maintained for at least the first year. Maybe I'll drag that thing down from the closet tomorrow. Or maybe I'll just guess. I can't imagine where he gets that tired, lazy inspiration!

I got an email from one of his classmates today inviting him to a laser tag party on Saturday. I'm not sure how to handle that one. Poor guy.

At lunchtime today, I almost told someone to have a good weekend. Not sure how to handle that one, either.

One day at a time, right?


  1. Well, I consider Monday part of the weekend so I think that was an accurate salutation.

    And just think, if you ever retire from your job, you can become a math teacher.

    Cautiously optimistic, cautiously optimistic...

  2. Of course you do, Ellie!

    If it makes you feel better, J, it took me a few seconds to even realize what was wrong with you wishing weekend wishes yesterday. (And I have nary a good excuse:-)

    No mother would remember. I don't even remember when Cappie held her head up and she is only 9 months old.

    You are neither tired or lazy. Okay, I'll give you tired.

    Laser tag? Laser tag just might be too much too soon...


  3. Hang in there, Jacq & Jimmy. Sounds like things are getting better (I hope, I hope, I hope!). Love you, MB

  4. You peeps are so supportive. I heart you.