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At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Monday, May 31, 2010

Monday, May 31

Happy Memorial Day!

Not much news to report from camp Wobble, things remain about the same. It's been a busy, fun-filled weekend of beach days, boating with dear friends, a padre game, and the general business-as-usual that long summer weekends promise. Sort of.

I can't even begin to tell you how awesome it is to have free access to things like sand wheelchairs, not to mention the cute lifeguards who fetch them for you. I love San Diego.

Clara's down for the count with a stomach bug, fingers crossed that it doesn't make the rounds.

I received Jimmy's medical records in the mail on Saturday, everything from the testing that was done in the hospital. Apparently, I need to submit a separate request for the outpatient stuff, which includes the second round of blood tests (I do know what was tested, just don't have results) and the lumbar puncture. If you think you could have any insight into what these tests might reveal, please do not hesitate to email me and I'll send you the scanned pages. If you don't have my email, just leave a comment and I'll get in touch.

Thanks everyone, enjoy the beautiful day!

3 comments:

  1. dymphna andersonMay 31, 2010 at 10:26 AM

    Cool wheels for Jimmy! I may need to try that out soon! And glad to hear Jackie got some great help fetching it! Nothing like eye candy on the beach!

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  2. Isn't it interesting and cool that you guys have been going to OB for years and years -- your kids' whole lives -- and now ol' wobble boy is there in wheels. Wheels! This ol' life of ours brings surprises that I, myself, for the life of me cannot figure out.

    Love you schnookie pie. So happy you got those medical records.

    xxEllie

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  3. Glad you decided to leave the pool and head to the beach; as Ellie states above, you guys have been there on holiday weekends always and forevah.

    We need to hit Pizza Port soon!

    xo,
    beth

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