At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Sunday, May 2, 2010

Where we stand, so to speak

We are so thankful for everyone who is wishing our boy well on this confounding journey. I feel badly for not updating people frequently enough, but it does sometimes become overwhelming to figure out who knows what, so I thought it would be wise to set up a blog that everyone can check at their leisure for updates and information.

If you want to be notified when there is an update, I think you can subscribe or something. I'll leave it to you wise folks to figure it out!

For now, we're just chilling. We went to the Padre game today, it was a gorgeous day in the sunshine and we all had a great time.

We continue to be in a holding pattern regarding diagnosis and prognosis. Jimmy's neurologist advised that he continue to stay home from school until the results of his newest blood work comes back, hopefully on Tuesday. His school has been great in thinking outside the box for ways to accommodate Jimmy and his wheelchair, so we look forward to regaining a sense of normalcy soon. The new normal is scary and mysterious, but we've got no choice but to tackle it, so tackle it we will.

Thanks for checking in on us, please keep Jimmy in your thoughts and prayers.

1 comment:

  1. Excellent idea, sistah, just excellent! (And it doesn't even involve Facebook!)