At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Wednesday, June 16, 2010

Wednesday, June 16

What a day.

What a D. A. Y.

Yesterday was amazing, I'm still floating. I've hardly had a chance to sit still since then, and I think that once I do, the emotions behind all of this will be overwhelming. I'm keeping it at arm's length for now, there's just so much going on this week!

My lovely niece Erin arrived tonight, and we've got Clara's birthday and Father's Day this weekend! The celebratory mood is palpable around here! Clara is so uncomplicated in her joy for Jimmy's wellness, so happy for the return of her partner in crime. She deserves a great birthday, and we're going to make it so. Bill says his father's day gift came yesterday, but we're going to make a fuss over his as well. But this blog is not about those yahoos, it's about the artist formerly known as Wobble Boy.

I hardly slept last night, I was so nervous about getting him up today, so anxious to see how he stood. When it was finally time to burst into his room, it was the same old: "can I please have five more minutes?" I came out to start on lunches, and when I hollered back for him to get up, already, he came running! God, what a sight he is! He's so TALL and vertical, it's really weird.

We got to school a bit early to get our bearings, he pushed the wheelchair but kept it folded. As soon as he walked in the gate, he was mobbed. A total celeb. His best buddy said: "Now you can do the SWING class with me, it's tonight!" lol. The decision was quickly made to move his class back upstairs (I asked that an adult accompany him on the stairs, at least for today), and then off he went, surrounded by his friends, everyone grinning from ear to ear.

He had a long day, and it seems that he mostly ignored my suggestion to take it easy and rest when he needed to. Wobble Boy is currently Hobble Boy, the kid is SORE. He sat on his butt for eight weeks, then literally leapt up and took off running. When Erin and I went to pick him up, he limped over and another kid said: "Jimmy played basketball today... he's good!"

It's all good. A little wobbly tonight, but I think that's to be expected. Then again, what the hell do I know?

Up and out early tomorrow, anxious to see how he does with balance exercises at PT.


  1. Oh, that brought tears to my eyes! I am so glad that he's better!

  2. All I can do is smile!
    My mom's "this too shall pass" rings true, except the 8 weeks seems a bit excessive when you're waiting for the "pass" part!

  3. You can almost exhale.

    Enjoy your jam-packed, joy-filled family-centered weekend. Ya'all deserve it!

    much love,

  4. I just can't get over it. It sort of feels like a miracle, doesn't it?

    And I have inside info that Jimmy is green-lighted for karate and bike-riding.

    This world is a cool place.


  5. Jacquie,

    I am so pleased for you and your family. I KNOW exactly how you feel!

    From one ex-wobbly kid mom to another :)