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At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Tuesday, June 8, 2010

Tuesday, June 8

How shall I begin, if not with: "sorry for not updating"????

I am. Sorry, that is. I know that I've created a situation in which people are hesitant to ask me how it's going, so they come to the blog, and there's nothing here.

Believe me, when there is encouraging news to report, I can hardly wait to get online and shout it from the rooftops.

Days like these, however, are more complicated. It's not discouraging, per se, but it's so confusing and inconsistent and mysterious. I'm just sick of myself whining about it. I am exhausted and frustrated and mystified and conflicted and ineffective and impatient and skeptical and scared and resigned and just so very tired of all of... this.

I want my Jimmy back.
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3 comments:

  1. Me, You, or EllieJune 9, 2010 at 7:44 AM

    Ach.

    Ellie

    ReplyDelete
  2. Me, You, or EllieJune 9, 2010 at 10:25 AM

    You must be exhausted. Thoroughly. But you are not ineffective. You are highly effective. It just seems that ACA has its own timetable.

    I want your Jimmy back for you too.

    xoxoxoxo,
    beth

    ReplyDelete
  3. dymphna andersonJune 9, 2010 at 4:46 PM

    Hi Jacquie,

    YOU ARE EFFECTIVE!!! in oh so many ways. If it weren't for your effective tenacity, Jimmy would not have gotten as much medical attention as he has now. You have effectively managed his healthcare needs, effectively maintained his spirits, effectively maintained your home life, effectively juggling mother and professional roles, effectively maintaining a whole school, etc, etc...

    You will get your Jimmy back!

    ReplyDelete

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