At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.

Friday, June 18, 2010

Friday, June 18

Hi there! I've got so much to share, so much to say. I'm overwhelmed by the love and support of everyone we see. We are just riding a cloud of euphoria, it still doesn't seem real and yet it is easy to forget that it's been just three days since Jimmy kicked that wheelchair to the curb. I do plan to finish this story and fill in the blanks, for our own archives and also for anyone out there who might face the kind of terrifying ordeal that we've been through. I've got my story of Jimmy's night in the hospital, some of his own journal entries to share, and lots of photos to plug in to all the other stories. As has so often been the case when I sit down to write here, I'm exhausted. Give me a few days to just enjoy the kid, and celebrate his sister's birthday and Father's Day. Then I'll come back and wrap up this saga. Nothing will please me more than to write The End.

Love and thanks to all of you for being there with us and hanging in there as we readjust yet again to a new normal. We like this one very much!


  1. I am so happy for you ALL!!!!! What a great summer you are going to have!! Enjoy!
    Lauri Brennan

  2. The End. How sweet that will be!

    But I do look forward to the saga wrap up. And additional photos. And it will no doubt be a wonderful resource for a family in your (former) position.

    Simply incredible.


  3. Your happiness is absolutely palpable, Jacquie. What a moment in your lives. I love hearing every dete, natch, so The End or not, I'll read every word you write here.

    Congrats, Amazing One!


    (p.s. my word is "bastash")