info

At age 11 and out of the blue, Jimmy lost his balance. His diagnosis is Acute Cerebellar Ataxia. He is currently wheelchair bound and we are working hard to find whatever it is that we need to fix. Here's where I'll try to keep everyone in the loop about what's going on.
Showing posts with label plans. Show all posts
Showing posts with label plans. Show all posts

Saturday, May 8, 2010

Still Saturday

Sorry about that, I was having a moment. Total Debbie Downer, geez. I took a long walk with the dumb dog, snuggled with my boy, and made myself a delicious ruby red cocktail. Suddenly, everything seems better! Actually, I've spent the last hour immersed in the National Ataxia Foundation's message boards. So many stories that ring familiar, ye gads. I've got some new stuff to research, action is good. I think that my depressed, down feeling came from realizing that we've now done just about every test and we still have no answers. I can't deal with the watch and wait prognosis, I need to DO something. And you know what I found out? There's an Ataxia Clinic at UCLA. The doctors here are annoying me, maybe it's time to start harassing the folks up north....